Participant’s Motives for Participation in and Potential Withdrawal from Biobank Projects

Data repositories, like research biobanks, seek to optimize the number of responding participants while simultaneously increasing the amount of data donated per participant. Such efforts aim to increase the repository’s value for its uses in medical research to improve health care, especially when data linkage is permitted by participants.

Pearson’s correlations between motives for participation and (potential) withdrawal and intrapersonal characteristics

The authors of this paper investigated individuals’ motives for participating in such projects and potential reasons for their withdrawal from participation in a population-based biobank. In addition, they analyzed how these motives were related to various characteristics of the participants and their willingness to permit data linkage to their personal data for research. These questions were explored using a sample of participants in the Dutch Lifelines biobank (n = 2615).

Motives for participation in and potential withdrawal of participation from a biobank can be differentiated into –

  1. Those relating to societal benefits and harm and
  2. Those relating to individual benefits and harm

In addition, these motives are differently associated with participants’ demographic and intrapersonal characteristics. The data suggest that the tendency to withdraw from participation could be countered by inducing perceptions of more individual benefits in the case of perceptions of limited societal benefits and low, narrow levels of trust in society.

    By submitting to this form, I confirm that I have read and agree to Krishagni's Privacy Policy.

    The 'OpenSpecimen Biobanking LIMS RFP Q&A' Excel is emailed to you.
    Feel free to Contact Us for any questions.

    Srikanth Adiga,
    C.E.0, OpenSpecimen
    Email: sri@krishagni.com


      Avoid Gmail, Yahoo, etc. please.

      By submitting to this form, I confirm that I have read and agree to Krishagni's Privacy Policy.

        By submitting to this form, I confirm that I have read and agree to Krishagni's Privacy Policy.

        The Features PDF has been emailed to you.
        Feel free to "Schedule a Demo" or "Contact Us" for any questions.

        Srikanth Adiga,
        C.E.0, OpenSpecimen
        Email: sri@krishagni.com

          By submitting to this form, I confirm that I have read and agree to Krishagni's Privacy Policy.