NIH Launched INCLUDE Data Hub for Down Syndrome Research

The INCLUDE (INvestigation of Co-occurring conditions across the Lifespan to Understand Down syndromE) Project Data Coordinating Center (DCC) recently launched the INCLUDE Data Hub, a free-to-use, one-of-a-kind online tool for sharing, collecting and analyzing data specifically about Down syndrome. The INCLUDE Data Hub provides centralized access to large-scale research resources, including a biospecimen library and clinical and multi-omics datasets, as part of the National Institutes of Health (NIH)-funded INCLUDE Project, a research effort to advance our understanding of health and quality-of-life needs of people with Down syndrome.

The Data Hub currently features data from more than 8,000 study participants and almost 30,000 biospecimens collected exclusively from people with Down syndrome. It centralizes data from multiple large, longitudinal research projects on Down syndrome, including DS-Connect®: The Down Syndrome Registry, the Gabriella Miller Kids First Pediatric Research Program, and the Crnic Institute Human Trisome Project. Since its initial launch on March 21, 2022, the Data Hub has added more than 148 active users.

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